Italian Journal of Pediatrics 2013-01-01

Issues in pediatric haemophilia care.

Paola Giordano, Massimo Franchini, Giuseppe Lassandro, Maria Felicia Faienza, Roberto Valente, Angelo Claudio Molinari

Index: Ital. J. Pediatr. 39 , 24, (2013)

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Abstract

The hemophilias are the most common X-linked inherited bleeding disorders. The challenges in children are different from that in adults and, If not properly managed, can lead to chronic disease and lifelong disabilities. Currently, inhibitors are the most severe complication and prophylaxis is emerging as the optimal preventive care strategy. Quality of life has become in the western countries the primary objective of the process of providing care, thus all the strategies (psychotherapy, physiotherapy, community life), not just the infusion of the missing factor, should be activated for the patient and family to give them the perception of being healthy.